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dc.contributor.authorEvans, Mairi
dc.contributor.authorPapadopoulos, Chris
dc.contributor.authorBurnham, John
dc.date.accessioned2024-06-11T08:59:45Z
dc.date.available2024-05-26T00:00:00Z
dc.date.available2024-06-11T08:59:45Z
dc.date.issued2024-05-26
dc.identifier.citationEvans M, Papadopoulos C, Burnham J (2024) 'Perceptions and experiences of UK-based mothers of autistic daughters in relation to the potential affordances and constraints of an autism diagnosis', Journal of Policy and Practice in Intellectual Disabilities, 21 (2), e12509en_US
dc.identifier.issn1741-1122
dc.identifier.doi10.1111/jppi.12509
dc.identifier.urihttp://hdl.handle.net/10547/626294
dc.description.abstractWhilst there is a growing body of research about autistic girls, much less is known about the experience of mothering an autistic girl, and the potential impact of the diagnosis. This study qualitatively explored the diagnostic journey of 12 mothers in the UK to identify the meanings attributed to their daughter's diagnosis. A thematic analysis was applied with themes examined through the lens of the CMM LUUUUTT model to further explore the stories lived and told by the mothers. Eighteen themes linked to perceived affordances, perceived constraints/constraints of perception, experienced affordances and experienced constraints. Participants highlighted the impact of autism myths and stereotypes which influenced identification, referral, diagnosis and ongoing support for the girls. Myths and stereotypes told about autism also played a significant role in the mothers lived experience of the diagnosis. An affordance of diagnosis was a new understanding about their daughters' needs, which led to new parenting styles, letting go of blame and resisting perceived societal ‘oughtisms’ about how parenting should be. Whilst the diagnosis was seen as relationally transformative, challenges were described in accessing emotional or educational support for their daughter's post-assessment.en_US
dc.language.isoenen_US
dc.publisherWileyen_US
dc.relation.urlhttps://onlinelibrary.wiley.com/doi/10.1111/jppi.12509en_US
dc.rightsYellow - can archive pre-print (ie pre-refereeing)
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 International*
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.subjectautismen_US
dc.subjectautism spectrum conditionen_US
dc.subjectmothersen_US
dc.subjectSubject Categories::C841 Health Psychologyen_US
dc.titlePerceptions and experiences of UK-based mothers of autistic daughters in relation to the potential affordances and constraints of an autism diagnosisen_US
dc.typeArticleen_US
dc.identifier.eissn1741-1130
dc.contributor.departmentBerkshire Healthcare NHS Foundation Trusten_US
dc.contributor.departmentTaos Instituteen_US
dc.contributor.departmentUniversity of Bedfordshireen_US
dc.identifier.journalJournal of Policy and Practice in Intellectual Disabilitiesen_US
dc.date.updated2024-06-11T08:56:05Z
dc.description.notegold oa
refterms.dateFOA2024-06-11T08:59:47Z


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