Taking a "care pathway/whole systems" approach to equality diversity inclusion (EDI) in organ donation and transplantation in relation to the needs of "ethnic/racial/migrant" minority communities: a statement and a call for action
Affiliation
University of InsubriaUniversity of Bedfordshire
Dutch Transplant Foundation
University of Barcelona
Issue Date
2023-07-31Subjects
Black and Ethnic Minoritiesinequities
migrants
organ donation
organ transplantation
Subject Categories::L431 Health Policy
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Show full item recordAbstract
International evidence shows variation in organ donation and transplantation (ODT) based upon a range of patient characteristics. What is less well understood is the impact of patient "ethnicity/race/immigration background," as these terms are defined and intended differently across countries. We also know that these characteristics do not operate in isolation but intersect with a range of factors. In this paper, we propose a framework that seeks to clarify the definition of the key terms "ethnicity/race/migrant" and to review how these communities are operationalized across European studies about inequities in ODT. Further, patients and the public wish to see Equality Diversity Inclusion (EDI) approaches in their everyday lives, not just in relation to ODT. We propose a 'care pathway/whole-systems' approach to ODT encompassing culturally competent public health interventions for a) the prevention and management of chronic diseases, b) improvements in public engagement for the promotion of the culture of ODT and enhancements in end-of-life care, through to c) enhanced likelihood of successful transplant among migrant/ethnic minority communities. Our framework recognizes that if we truly wish to take an EDI approach to ODT, we need to adopt a more social, human and holistic approach to examining questions around patient ethnicity.Citation
Grossi AA, Randhawa G, Jansen NE, Paredes-Zapata D (2023) 'Taking a "care pathway/whole systems" approach to equality diversity inclusion (EDI) in organ donation and transplantation in relation to the needs of "ethnic/racial/migrant" minority communities: a statement and a call for action', Transplant International, 36 (11310)Publisher
FrontiersJournal
Transplant InternationalPubMed ID
37600748PubMed Central ID
PMC10437067Type
ArticleLanguage
enISSN
0934-0874EISSN
1432-2277ae974a485f413a2113503eed53cd6c53
10.3389/ti.2023.11310
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