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    Patient empowerment for cancer patients through a novel ICT infrastructure

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    Authors
    Kondylakis, Haridimos
    Bucur, Anca
    Crico, Chiara
    Dong, Feng
    Graf, Norbert
    Hoffman, Stefan
    Koumakis, Lefteris
    Manenti, Alice
    Marias, Kostas
    Mazzocco, Ketti
    Pravettoni, Gabrielli
    Renzi, Chiara
    Schera, Fatima
    Triberti, Stefano
    Tsiknakis, Manolis
    Kiefer, Stefan
    Show allShow less
    Affiliation
    FORTH-ICS, Greece
    PHILIPS Research Europe
    European Institute of Oncology, Milan
    University of Bedfordshire
    Saarland University
    Promotion Software GmbH, Berlin
    Fraunhofer Institute for Biomedical Engineering, Germany
    Issue Date
    2019-12-06
    Subjects
    psychoemotional monitoring
    personal health system
    patient empowerment
    cancer
    
    Metadata
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    Abstract
    As a result of recent advances in cancer research and “precision medicine” approaches, i.e. the idea of treating each patient with the right drug at the right time, more and more cancer patients are being cured, or might have to cope with a life with cancer. For many people, cancer survival today means living with a complex and chronic condition. Surviving and living with or beyond cancer requires the long-term management of the disease, leading to a significant need for active rehabilitation of the patients. In this paper, we present a novel methodology employed in the iManageCancer project for cancer patient empowerment in which personal health systems, serious games, psychoemotional monitoring and other novel decision-support tools are combined into an integrated patient empowerment platform. We present in detail the ICT infrastructure developed and our evaluation with the involvement of cancer patients on two sites, a large-scale pilot for adults and a small-scale test for children. The evaluation showed mixed evidences on the improvement of patient empowerment, while ability to cope with cancer, including improvement in mood and resilience to cancer, increased for the participants of the adults′ pilot.
    Citation
    Kondylakis H, Bucur A, Crico C, Dong F, Graf N, Hoffman S, Koumakis L, Manenti A, Marias K, Mazzocco K, Pravettoni G, Renzi C, Schera F, Triberti S, Tsiknakis M, Kiefer S (2020) 'Patient empowerment for cancer patients through a novel ICT infrastructure', Journal of Biomedical Informatics, 101
    Publisher
    Academic Press Inc.
    Journal
    Journal of Biomedical Informatics
    URI
    http://hdl.handle.net/10547/623881
    DOI
    10.1016/j.jbi.2019.103342
    PubMed ID
    31816400
    Additional Links
    https://www.sciencedirect.com/science/article/pii/S1532046419302618
    Type
    Article
    Language
    en
    ISSN
    1532-0464
    ae974a485f413a2113503eed53cd6c53
    10.1016/j.jbi.2019.103342
    Scopus Count
    Collections
    Computing

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