Show simple item record

dc.contributor.authorHann, Katie E.J.en
dc.contributor.authorAli, Nasreenen
dc.contributor.authorGessler, Sueen
dc.contributor.authorFraser, Lindsay Sarah Macduffen
dc.contributor.authorSide, Lucyen
dc.contributor.authorWaller, Joen
dc.contributor.authorSanderson, Saskia C.en
dc.contributor.authorLanceley, Anneen
dc.date.accessioned2019-12-12T12:49:14Z
dc.date.available2019-12-12T12:49:14Z
dc.date.issued2018-07-18
dc.identifier.citationHann KEJ, Ali N, Gessler S, Fraser LSM, Side L, Waller J, Sanderson SC, Lanceley A (2018) 'Attitudes towards a programme of risk assessment and stratified management for ovarian cancer: a focus group study of UK South Asians' perspectives', BMJ Open, 8 (7)en
dc.identifier.issn2044-6055
dc.identifier.pmid30021754
dc.identifier.doi10.1136/bmjopen-2018-021782
dc.identifier.urihttp://hdl.handle.net/10547/623629
dc.description.abstractA crucial first step to enable implementation of population-based genetic risk assessment and management in OC is to raise awareness of OC within SA communities. It will be important to engage with the SA community early on in programme implementation to address their specific concerns and to ensure culturally tailored decision support. Population-based risk assessment, using genetic testing and the provision of appropriate risk management, could lead to prevention, early detection and improved clinical management of ovarian cancer (OC). Previous research with mostly white British participants found positive attitudes towards such a programme. The current study aimed to explore the attitudes of South Asian (SA) women and men in the UK with the aim of identifying how best to implement such a programme to minimise distress and maximise uptake. Semistructured qualitative focus group discussions. Community centres across North London and Luton. 49 women and 13 men who identified as SA (Indian, Pakistani or Bangladeshi), which constitutes the largest non-European ethnic minority group in the UK. Seven community-based focus groups were held. Group discussions were transcribed verbatim, coded and analysed thematically. Awareness and knowledge of OC symptoms and specific risk factors was low. The programme was acceptable to most participants and attitudes to it were generally positive. Participants' main concerns related to receiving a high-risk result following the genetic test. Younger women may be more cautious of genetic testing, screening or risk-reducing surgery due to the importance of marriage and childbearing in their SA cultures. CONCLUSIONS OBJECTIVE DESIGN SETTING PARTICIPANTS METHODS RESULTS
dc.language.isoenen
dc.publisherBMJen
dc.relation.urlhttps://bmjopen.bmj.com/content/8/7/e021782en
dc.rightsGreen - can archive pre-print and post-print or publisher's version/PDF
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.subjectovarian canceren
dc.subjectgenetic testingen
dc.subjectrisk assessmenten
dc.subjectrisk stratificationen
dc.subjectrisk managementen
dc.subjectH123 Public Health Engineeringen
dc.titleAttitudes towards a programme of risk assessment and stratified management for ovarian cancer: a focus group study of UK South Asians' perspectivesen
dc.typeArticleen
dc.identifier.eissn2044-6055
dc.contributor.departmentRoyal Holloway, University of Londonen
dc.contributor.departmentUniversity of Bedfordshireen
dc.contributor.departmentUniversity College Londonen
dc.identifier.journalBMJ Openen
dc.identifier.pmcidPMC6059306
dc.date.updated2019-12-12T12:45:24Z
dc.description.noteopen access article with cc licence
html.description.abstractA crucial first step to enable implementation of population-based genetic risk assessment and management in OC is to raise awareness of OC within SA communities. It will be important to engage with the SA community early on in programme implementation to address their specific concerns and to ensure culturally tailored decision support. Population-based risk assessment, using genetic testing and the provision of appropriate risk management, could lead to prevention, early detection and improved clinical management of ovarian cancer (OC). Previous research with mostly white British participants found positive attitudes towards such a programme. The current study aimed to explore the attitudes of South Asian (SA) women and men in the UK with the aim of identifying how best to implement such a programme to minimise distress and maximise uptake. Semistructured qualitative focus group discussions. Community centres across North London and Luton. 49 women and 13 men who identified as SA (Indian, Pakistani or Bangladeshi), which constitutes the largest non-European ethnic minority group in the UK. Seven community-based focus groups were held. Group discussions were transcribed verbatim, coded and analysed thematically. Awareness and knowledge of OC symptoms and specific risk factors was low. The programme was acceptable to most participants and attitudes to it were generally positive. Participants' main concerns related to receiving a high-risk result following the genetic test. Younger women may be more cautious of genetic testing, screening or risk-reducing surgery due to the importance of marriage and childbearing in their SA cultures. CONCLUSIONS OBJECTIVE DESIGN SETTING PARTICIPANTS METHODS RESULTS


Files in this item

Thumbnail
Name:
e021782.full.pdf
Size:
267.6Kb
Format:
PDF

This item appears in the following Collection(s)

Show simple item record

Green - can archive pre-print and post-print or publisher's version/PDF
Except where otherwise noted, this item's license is described as Green - can archive pre-print and post-print or publisher's version/PDF