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dc.contributor.authorCamm-Crosbie, Louiseen
dc.contributor.authorBradley, Louiseen
dc.contributor.authorShaw, Rebeccaen
dc.contributor.authorBaron-Cohen, Simonen
dc.contributor.authorCassidy, Sarahen
dc.date.accessioned2019-11-21T10:37:29Z
dc.date.available2019-11-21T10:37:29Z
dc.date.issued2018-11-29
dc.identifier.citationCamm-Crosbie L, Bradley L, Shaw R, Baron-Cohen S, Cassidy S (2018) '“People like me don”t get support’: autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality', Autism, 23 (6), pp.1431-1441.en
dc.identifier.issn1362-3613
dc.identifier.pmid30497279
dc.identifier.doi10.1177/1362361318816053
dc.identifier.urihttp://hdl.handle.net/10547/623602
dc.description.abstractAutistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples’ experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals’ experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18–67 (mean =  38.9 years, standard deviation =  11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people’s well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services.
dc.language.isoenen
dc.publisherSageen
dc.relation.urlhttps://journals.sagepub.com/doi/10.1177/1362361318816053en
dc.rightsGreen - can archive pre-print and post-print or publisher's version/PDF
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.subjectautism spectrum conditionen
dc.subjectmental healthen
dc.subjectself-injuryen
dc.subjectsuicideen
dc.subjectsocial supporten
dc.subjecttreatmenten
dc.subjectC841 Health Psychologyen
dc.title'People like me don”t get support’: autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidalityen
dc.typeArticleen
dc.identifier.journalAutismen
dc.identifier.pmcidPMC6625034
dc.date.updated2019-11-21T10:33:29Z
dc.description.notegold open access article with cc licence
html.description.abstractAutistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples’ experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals’ experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18–67 (mean =  38.9 years, standard deviation =  11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people’s well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services.


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