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dc.contributor.authorWilkinson, Emmaen
dc.contributor.authorRandhawa, Gurchen
dc.contributor.authorBrown, Edwinaen
dc.contributor.authorGane, Maria da Silvaen
dc.contributor.authorStoves, Johnen
dc.contributor.authorWarwick, Grahamen
dc.contributor.authorMir, Tahiraen
dc.contributor.authorMagee, Reginaen
dc.contributor.authorSharman, Sueen
dc.contributor.authorFarrington, Kenen
dc.date.accessioned2019-01-22T13:16:34Z
dc.date.available2019-01-22T13:16:34Z
dc.date.issued2017-02-16
dc.identifier.citationWilkinson E, Randhawa G, Brown E, Gane MDS, Stoves J, Warwick G, Mir T, Magee R, Sharman S, Farrington K (2017) 'Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients', Clinical Kidney Journal, 10 (3), pp.419-424.en
dc.identifier.issn2048-8505
dc.identifier.pmid28616221
dc.identifier.doi10.1093/ckj/sfw151
dc.identifier.urihttp://hdl.handle.net/10547/623075
dc.description.abstractBackground. With an ageing and increasingly diverse population at risk from rising levels of obesity, diabetes and cardiovascular disease, including kidney complications, there is a need to provide quality care at all stages in the care pathway including at the end of life and to all patients. Aim. This study purposively explored South Asian patients’ experiences of kidney end of life care to understand how services can be delivered in a way that meets diverse patient needs. Methods. Within an action research design 14 focus groups (45 care providers) of kidney care providers discussed the recruitment and analysis of individual interviews with 16 South Asian kidney patients (eight men, eight women). Emergent themes from the focus groups were analysed thematically. The research took place at four UK centres providing kidney care to diverse populations: West London, Luton, Leicester and Bradford. Results. Key themes related to time and the timing of discussions about end of life care and the factors that place limitations on patients and providers in talking about end of life care. Lack of time and confidence of nurses in areas of kidney care, individual attitudes and workforce composition influence whether and how patients have access to end of life care through kidney services. Conclusion. Training, team work and time to discuss overarching issues (including timing and communication about end of life) with colleagues could support service providers to facilitate access and delivery of end of life care to this group of patients.
dc.language.isoenen
dc.publisherOxford University Press (OUP)en
dc.relation.urlhttps://academic.oup.com/ckj/article/10/3/419/2999727en
dc.relation.urlhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC5466116/
dc.rightsGreen - can archive pre-print and post-print or publisher's version/PDF
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.subjectculturally competenten
dc.subjectdiversityen
dc.subjectethnicityen
dc.subjectkidney patientsen
dc.subjectend-of-life careen
dc.subjectA900 Others in Medicine and Dentistryen
dc.titleTime, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patientsen
dc.typeArticleen
dc.identifier.eissn2048-8505
dc.contributor.departmentUniversity of Bedfordshireen
dc.contributor.departmentImperial College Healthcare NHS Trusten
dc.contributor.departmentEast and North Herts NHS Trusten
dc.contributor.departmentBradford Teaching Hospitals NHS Foundation Trusten
dc.contributor.departmentUniversity Hospitals of Leicester NHS Trusten
dc.identifier.journalClinical Kidney Journalen
dc.identifier.pmcidPMC5466116
dc.date.updated2019-01-22T13:12:53Z
dc.description.noteopen access article
html.description.abstractBackground. With an ageing and increasingly diverse population at risk from rising levels of obesity, diabetes and cardiovascular disease, including kidney complications, there is a need to provide quality care at all stages in the care pathway including at the end of life and to all patients. Aim. This study purposively explored South Asian patients’ experiences of kidney end of life care to understand how services can be delivered in a way that meets diverse patient needs. Methods. Within an action research design 14 focus groups (45 care providers) of kidney care providers discussed the recruitment and analysis of individual interviews with 16 South Asian kidney patients (eight men, eight women). Emergent themes from the focus groups were analysed thematically. The research took place at four UK centres providing kidney care to diverse populations: West London, Luton, Leicester and Bradford. Results. Key themes related to time and the timing of discussions about end of life care and the factors that place limitations on patients and providers in talking about end of life care. Lack of time and confidence of nurses in areas of kidney care, individual attitudes and workforce composition influence whether and how patients have access to end of life care through kidney services. Conclusion. Training, team work and time to discuss overarching issues (including timing and communication about end of life) with colleagues could support service providers to facilitate access and delivery of end of life care to this group of patients.


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