Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
Gane, Maria da Silva
AffiliationUniversity of Bedfordshire
Imperial College Healthcare NHS Trust
East and North Herts NHS Trust
Bradford Teaching Hospitals NHS Foundation Trust
University Hospitals of Leicester NHS Trust
A900 Others in Medicine and Dentistry
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AbstractBackground. With an ageing and increasingly diverse population at risk from rising levels of obesity, diabetes and cardiovascular disease, including kidney complications, there is a need to provide quality care at all stages in the care pathway including at the end of life and to all patients. Aim. This study purposively explored South Asian patients’ experiences of kidney end of life care to understand how services can be delivered in a way that meets diverse patient needs. Methods. Within an action research design 14 focus groups (45 care providers) of kidney care providers discussed the recruitment and analysis of individual interviews with 16 South Asian kidney patients (eight men, eight women). Emergent themes from the focus groups were analysed thematically. The research took place at four UK centres providing kidney care to diverse populations: West London, Luton, Leicester and Bradford. Results. Key themes related to time and the timing of discussions about end of life care and the factors that place limitations on patients and providers in talking about end of life care. Lack of time and confidence of nurses in areas of kidney care, individual attitudes and workforce composition influence whether and how patients have access to end of life care through kidney services. Conclusion. Training, team work and time to discuss overarching issues (including timing and communication about end of life) with colleagues could support service providers to facilitate access and delivery of end of life care to this group of patients.
CitationWilkinson E, Randhawa G, Brown E, Gane MDS, Stoves J, Warwick G, Mir T, Magee R, Sharman S, Farrington K (2017) 'Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients', Clinical Kidney Journal, 10 (3), pp.419-424.
PublisherOxford University Press (OUP)
JournalClinical Kidney Journal
PubMed Central IDPMC5466116
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