Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients
Authors
Wilkinson, EmmaRandhawa, Gurch
Brown, Edwina
Gane, Maria da Silva
Stoves, John
Warwick, Graham
Mir, Tahira
Magee, Regina
Sharman, Sue
Farrington, Ken
Affiliation
University of BedfordshireImperial College Healthcare NHS Trust
East and North Herts NHS Trust
Bradford Teaching Hospitals NHS Foundation Trust
University Hospitals of Leicester NHS Trust
Issue Date
2017-02-16Subjects
culturally competentdiversity
ethnicity
kidney patients
end-of-life care
A900 Others in Medicine and Dentistry
Metadata
Show full item recordAbstract
Background. With an ageing and increasingly diverse population at risk from rising levels of obesity, diabetes and cardiovascular disease, including kidney complications, there is a need to provide quality care at all stages in the care pathway including at the end of life and to all patients. Aim. This study purposively explored South Asian patients’ experiences of kidney end of life care to understand how services can be delivered in a way that meets diverse patient needs. Methods. Within an action research design 14 focus groups (45 care providers) of kidney care providers discussed the recruitment and analysis of individual interviews with 16 South Asian kidney patients (eight men, eight women). Emergent themes from the focus groups were analysed thematically. The research took place at four UK centres providing kidney care to diverse populations: West London, Luton, Leicester and Bradford. Results. Key themes related to time and the timing of discussions about end of life care and the factors that place limitations on patients and providers in talking about end of life care. Lack of time and confidence of nurses in areas of kidney care, individual attitudes and workforce composition influence whether and how patients have access to end of life care through kidney services. Conclusion. Training, team work and time to discuss overarching issues (including timing and communication about end of life) with colleagues could support service providers to facilitate access and delivery of end of life care to this group of patients.Citation
Wilkinson E, Randhawa G, Brown E, Gane MDS, Stoves J, Warwick G, Mir T, Magee R, Sharman S, Farrington K (2017) 'Time, timing, talking and training: findings from an exploratory action research study to improve quality of end of life care for minority ethnic kidney patients', Clinical Kidney Journal, 10 (3), pp.419-424.Publisher
Oxford University Press (OUP)Journal
Clinical Kidney JournalPubMed ID
28616221PubMed Central ID
PMC5466116Additional Links
https://academic.oup.com/ckj/article/10/3/419/2999727https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5466116/
Type
ArticleLanguage
enISSN
2048-8505EISSN
2048-8505ae974a485f413a2113503eed53cd6c53
10.1093/ckj/sfw151
Scopus Count
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- Creative Commons
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