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dc.contributor.authorPapadopoulos, Chrisen
dc.contributor.authorLodder, Annemarieen
dc.contributor.authorConstantinou, Georginaen
dc.contributor.authorRandhawa, Gurchen
dc.date.accessioned2019-01-07T11:49:45Z
dc.date.available2019-01-07T11:49:45Z
dc.date.issued2018-12-19
dc.identifier.citationPapadopoulos C, Lodder A, Constantinou G, Randhawa G. (2018) 'Systematic review of the relationship between autism stigma and informal caregiver mental health', Journal of Autism and Developmental Disorders, 49 (4), pp.1665-1685.en
dc.identifier.issn0162-3257
dc.identifier.pmid30569408
dc.identifier.doi10.1007/s10803-018-3835-z
dc.identifier.urihttp://hdl.handle.net/10547/623056
dc.description.abstractFamilies play a crucial role in determining the mental health of the autistic individual(s) they are caring for. However, the stigma associated with autism can impair caregiver health. To investigate this, empirical evidence pertaining to stigma's impact on informal caregivers' mental health was systematically reviewed. All twelve included studies (n = 1442 informal caregivers) consistently reported the impact of autism related stigma upon caregiver mental health to be significant, meaningful and complex. A new theoretical framework describing the relationship between stigma and caregiver mental health is constructed. Moderating variables include those both changeable through intervention (e.g. hopelessness, self-esteem, self-compassion) and not changeable (gender, culture, financial burden and time since diagnosis). Implications and recommendations for professionals, interventions and future research are proposed.
dc.description.sponsorshipAutisticaen
dc.language.isoenen
dc.publisherSpringeren
dc.relation.urlhttps://link.springer.com/article/10.1007/s10803-018-3835-zen
dc.rightsGreen - can archive pre-print and post-print or publisher's version/PDF
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.subjectautismen
dc.subjectstigmaen
dc.subjectmental healthen
dc.subjectAutism Spectrum Disorder (ASD)en
dc.subjectcarergiversen
dc.subjectL340 Disability in Societyen
dc.titleSystematic review of the relationship between autism stigma and informal caregiver mental healthen
dc.typeArticleen
dc.identifier.eissn1573-3432
dc.contributor.departmentUniversity of Bedfordshireen
dc.identifier.journalJournal of Autism and Developmental Disordersen
dc.date.updated2019-01-07T11:43:07Z
dc.description.noteopen access article
html.description.abstractFamilies play a crucial role in determining the mental health of the autistic individual(s) they are caring for. However, the stigma associated with autism can impair caregiver health. To investigate this, empirical evidence pertaining to stigma's impact on informal caregivers' mental health was systematically reviewed. All twelve included studies (n = 1442 informal caregivers) consistently reported the impact of autism related stigma upon caregiver mental health to be significant, meaningful and complex. A new theoretical framework describing the relationship between stigma and caregiver mental health is constructed. Moderating variables include those both changeable through intervention (e.g. hopelessness, self-esteem, self-compassion) and not changeable (gender, culture, financial burden and time since diagnosis). Implications and recommendations for professionals, interventions and future research are proposed.


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