Systematic review of the relationship between autism stigma and informal caregiver mental health
Affiliation
University of BedfordshireIssue Date
2018-12-19Subjects
autismstigma
mental health
Autism Spectrum Disorder (ASD)
carergivers
L340 Disability in Society
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Show full item recordAbstract
Families play a crucial role in determining the mental health of the autistic individual(s) they are caring for. However, the stigma associated with autism can impair caregiver health. To investigate this, empirical evidence pertaining to stigma's impact on informal caregivers' mental health was systematically reviewed. All twelve included studies (n = 1442 informal caregivers) consistently reported the impact of autism related stigma upon caregiver mental health to be significant, meaningful and complex. A new theoretical framework describing the relationship between stigma and caregiver mental health is constructed. Moderating variables include those both changeable through intervention (e.g. hopelessness, self-esteem, self-compassion) and not changeable (gender, culture, financial burden and time since diagnosis). Implications and recommendations for professionals, interventions and future research are proposed.Citation
Papadopoulos C, Lodder A, Constantinou G, Randhawa G. (2018) 'Systematic review of the relationship between autism stigma and informal caregiver mental health', Journal of Autism and Developmental Disorders, 49 (4), pp.1665-1685.Publisher
SpringerPubMed ID
30569408Additional Links
https://link.springer.com/article/10.1007/s10803-018-3835-zType
ArticleLanguage
enISSN
0162-3257EISSN
1573-3432Sponsors
Autisticaae974a485f413a2113503eed53cd6c53
10.1007/s10803-018-3835-z
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- Creative Commons
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