• Confidence and expectations about caring for older people with dementia: a cross-sectional survey of student nurses

      Baillie, Lesley; Merritt, Jane; Cox, Janet; Crichton, Nicola; ; University of Bedfordshire; South Bank University (Routledge, 2015-06-11)
      Older people who are living with dementia often need healthcare, including hospital admissions, due to additional health conditions. Caring for older people who are living with dementia is, therefore, a core nursing role. This study investigated student nurses’ expectations of, and confidence about, caring for older people with dementia and the effect of students’ age, precourse experience, and their academic year. The design was a cross-sectional survey using questionnaires to collect data. The participants (n = 328), based at one university in England, had all had at least one practice learning placement. Most student nurses (n = 202; 62%) had precourse contact with older people with dementia and had cared for them during the course (n = 291; 89%). The student's academic year significantly affected confidence about caring for older people with dementia (p = .006), but still only 52% (n = 26) of third-year students felt “generally confident.” Precourse contact with older people with dementia had a significant impact on expectations (p = .001) and confidence in caring for people with dementia (p = .002). Students who were >25 years were significantly more likely to have had precourse contact with older people with dementia (p = < .001). Nurse educators should ensure that students entering nurse education appreciate that caring for older people who are living with dementia will be a core part of their role. They must proactively prepare nursing students to care for people with dementia, recognizing that some students have no previous contact, which may affect their confidence and experiences.
    • Couple relationships in families with dependent children after a diagnosis of maternal breast cancer in the United Kingdom: perspectives from mothers and fathers

      Corney, Roslyn; Puthussery, Shuby; Swinglehurst, Jane; University of Bedfordshire; University of Greenwich (Routledge, 2016-03-30)
      This article examines the facilitators and the barriers to couple relationships in families in the UK with dependent children after a diagnosis of maternal breast cancer. Qualitative data were collected through in-depth semi-structured interviews with 23 participants, including 10 couples and three women whose partners did not take part. Recorded interviews were analyzed using a thematic approach identifying themes and patterns in the interview transcripts and categorizing them using a framework. Key individual and contextual factors perceived as barriers or facilitators to couple relationships included: being a “young” family with young children, frustration and resentment from male partners, women’s reactions to the illness, individual communication styles, differing needs for “personal space,” body image concerns, and social support. Findings indicated the need for strengthening “family focus” in services with adequate support for male partners. Health and family services should consider variability in the experiences of couples with dependent children and be sensitive to the needs of partners alongside the women.
    • Effect of e-learning on health sciences education: a protocol for systematic review and meta-analysis

      Regmi, Krishna; Jones, Linda; University of Bedfordshire; University of Dundee (Routledge, 2021-02-24)
      E-learning has been widely used in higher education as it provides better access to learning resources online, utilising technology to enhance learning. Despite growing evidence claiming that e-learning is as effective as traditional means of learning, the evidence is still very limited. This protocol aims to measure the impact of e-learning as compared to traditional face-to-face learning, both measured and perceived, on health sciences education – in terms of improving students’/health professionals’ satisfaction, knowledge, skills, and behaviours and patient-related outcomes. We will conduct a systematic review and meta-analysis of both randomised controlled trials and non-randomised controlled trials. Major databases will be searched for studies, and will be reported in accordance with PRISMA. A thematic analysis will be conducted for the included studies. If sufficient data are available, the random-effects model for meta-analysis will be performed. The outcome of this study will provide a basis for developing the best methods of e-learning in health sciences education.
    • Profiling patient attitudes to phosphate binding medication: a route to personalising treatment and adherence support

      Chater, Angel M.; Parham, Rhian; Riley, Steve; Hutchison, Alastair J.; Horne, Robert (Routledge, 2014-07-11)
      Objective: Nonadherence to phosphate binding medication (PBM) compromises the efficacy of treatment for chronic kidney disease, but its causes are poorly understood. This study sought to explore patient attitudes towards PBM and to evaluate the utility of the necessity-concerns framework for understanding adherence to PBM. Design: A sample of 221 dialysis patients currently prescribed PBM were surveyed from eight UK renal units. Main Outcome Measures: Demographic data and clinical information, alongside the Beliefs about Medicines Questionnaire and the medication adherence report scale were reported. Results: Low adherence to PBM was predicted by reduced beliefs in personal need for PBM (OR = .34; 95% CI: .14–.83; p < .05), and increased concerns about PBM (OR = 3.17; 95% CI: 1.87–5.37; p < .001). Patients were categorised into attitudinal groups based on their beliefs about PBM and being ‘skeptical’ of PBM (low necessity beliefs and high concerns) was most associated with low adherence. Conclusion: Strategies to improve adherence to PBM should aim to elicit and address patients’ beliefs about their personal need for PBM and their concerns about this medication.
    • Public opinion and perceptions of organ donation and transplantation among Asian communities: an exploratory study in Luton, UK

      Darr, Aamra; Randhawa, Gurch; University of Bedfordshire (Routledge, 1999-04-01)
      There is a growing demand for human organs for transplantation, particularly of the kidney among the UK's Asian population which, due to problems with histocompatibility can only be met with a significant increase in the number of Asian donors. Only very recently have specific attempts been made to attract donors from Asian communities using ‘ethnically-targeted mass media’. However, there is little information available on the effectiveness of these initiatives in providing information with regards to organ donation for the Asian population. An exploratory qualitative study was therefore undertaken in relation to this issue among a cross-section of the Asian population of Luton. The findings show that detailed information related to transplantation activity has been learned only through the experience of people undergoing transplants within the community and has been transmitted through these various informal networks rather than through the resources provided by the Department of Health. The limited success of campaigns to date is reflected in the fact that nearly half of the respondents in this survey did not know what a donor card was used for and approximately half of these had never seen one; only 6 people had heard of the National Donor Register. Of the 3 people who carried a donor card, 2 had an immediate family member who had undergone a transplant. Another example of the failure to inform effectively the relevant populations about important developments is that only 2 of the 32 muslims in the survey had heard of the ‘fatwa’ by the Muslim Legislative Council permitting organ donation. With the urgent need for greater numbers of donors from the Asian population, appropriate strategies for effective provision of information concerning organ donation and transplantation need to be developed quickly before the crisis worsens.
    • Women's experiences of living with albinism in Taiwan and perspectives on reproductive decision making: a qualitative study

      Huang, Mei-Zen; Chen, Li-Li; Hung, Shu-Ling; Puthussery, Shuby; National Tainan Junior College of Nursing; National Taipei University of Nursing and Health Sciences; University of Bedfordshire (Routledge, 2020-12-21)
      People with Albinism tend to face multiple adverse physical, psychological and social consequences. Very little is known about experiences of women with Albinism and their deliberations whilst making reproductive decisions. This study aimed to explore lived experiences of women with Albinism and to understand their perspectives on reproductive decision making. Qualitative in-depth semi-structured interviews were conducted with ten women with Albinism in Taiwan. Five key themes emerged from the accounts which were centred around the sense of discrimination that they felt whilst growing up, their strive for normality, making difficult choices in their reproductive decisions, desire to protect children from harm and reflections of parenting struggles from own experiences and the experiences of their parents. We call for global and national policy makers and practitioners to introduce explicit measures to challenge the myths, stereotypes and prejudices associated with Albinism including specific interventions towards supporting women in pregnancy decision making.