• Country profile: intellectual and developmental disability in Nigeria

      Sango, Precious Nonye; Canterbury Christ Church University (Emerald, 2017-04-03)
      Purpose The purpose of this paper is to provide a contextual and general overview of intellectual and developmental disability (IDD) in Nigeria. Design/methodology/approach The paper uses a chronological approach, providing an assessment of the understanding and treatment of people with IDD from the pre-colonial era to the present. Findings Nigeria has experienced a different historical path in terms of treatment and service provision for people with IDD compared to industrialised and developing countries such as the UK and Brazil. Originality/value Nigeria is the most populous country in Africa with an emerging economy and thus important to review the treatment and social inclusion of people with IDD in the country’s development.
    • Evaluation of the sleep project for unaccompanied asylum-seeking children in Kent

      Carr, Helen; Hatzidimitriadou, Eleni; Sango, Precious Nonye; Canterbury Christ Church University (Canterbury Christ Church University, 2017-12-01)
      It has been a privilege to evaluate the Sleep Project intervention for unaccompanied asylum-seeking children (UASC). The opportunity to evaluate this project arose through discussions between the authors and Dr. Ana Draper, exploring the work of Ana, her team and colleagues across the various agencies in supporting newly-arrived migrant children in Kent. From 2015, there was a rapid increase in the number of UASC arriving into the region and services were quickly adapted to meet the specific and immediate needs of these vulnerable children and young people, the Sleep Project being just one of the innovative interventions put in place. Unaccompanied asylum-seeking children and young people have usually experienced harrowing journeys to the United Kingdom (UK) in seeking safety and refuge. Once in the UK, adapting to life within reception centres, foster families or supported housing, brings further challenges and within this context, practitioners and the young people identified sleep as a key problematic issue for which they required extra support. Through conversations with practitioners and young people, sleep difficulties were a recurring issue. Lack of sleep and disturbed sleep was preventing the young people from engaging in planned activities such as language classes. Tiredness was having negative health and social/educational impacts. This evaluation studies the benefits and challenges of the creative support mechanisms that were developed to address the sleep issues. This report presents our findings from the evaluation study of the Sleep Project intervention. The study comprised of 18 interviews with practitioners either working directly or indirectly with UASC, in paid and voluntary capacities. From the interviews, the qualitative data was thematically analysed to develop themes under which the benefits and challenges of the intervention could be explored. Throughout the interviews with practitioners working either directly with UASC or indirectly in managerial roles, it became apparent that there was a high level of commitment from individuals to develop their understanding of UASCs’ needs and to develop appropriate social care practice and support. The interviews highlighted that practitioners were prepared to think and act creatively to improve and to tailor support for this group of children and young people. The findings of the evaluation suggest that the Sleep Project was very well-received by young people and practitioners alike. It provided practical resources and support for good sleep, and it encouraged conversations to develop between the practitioners and the young people, and between the young people themselves, normalising the sleep issues that they were experiencing, and, according to interviewees, the young people were found to be encouraging other young people to use the good sleep packs. The intervention helped the practitioners feel more confident and equipped with skills to talk to the young people about sleep and, possibly, this led to deeper discussions about individual journeys and experiences, allowing care to become more empathetic, specific and person-centred. Significantly, interviewees reported that the project allowed them to ‘look at the basics’, that is, practical help such as providing night lights and educating young people about factors that hamper a good night’s sleep, whilst practitioners gained a greater understanding and responsiveness as to why the young people could struggle with sleep. This greater understanding has been important for shifting the perceptions of practitioners, particularly those in educational roles, helping them to be more patient and supportive to young people struggling to get to lessons on time and to concentrate. Key messages from the findings of this evaluation study are encapsulated in the following quotes from interviewees: • ‘I think it’s thinking a bit more innovatively about the care we can provide’ • ‘A confidence to look at the basics’ • ‘Context switched concepts’. Proposed recommendations involve: sustaining the work so far, looking at how the project could/should have a legacy, and building on the developed knowledge and networks. At the time of the publication of this report, young people are being transferred to other receiving local authorities outside Kent – a national dispersal scheme that was agreed by the Home Office in June 2016 to ease the pressure on Kent - therefore good practice from this project should be widely disseminated to service providers and policy makers at regional and national levels.
    • Intellectual and developmental disabilities, spirituality and religion: a systematic review 1990–2015

      Sango, Precious Nonye; Forrester-Jones, Rachel; Canterbury Christ Church University; University of Kent (Taylor & Francis, 2017-06-23)
      Over the past two decades, research on religion and spirituality has begun to gain momentum. Nevertheless, to the authors’ knowledge, a systematic review of empirical research in the field of intellectual and developmental disabilities (IDD), social care services, and spirituality has not been carried out in the last 20 years. Six psychology-, IDD-, religion-, and health-related journals were searched in addition to two databases. Empirical articles published between 1990 and 2015 on religion, religiosity, spirituality, spiritual or religious care and people with IDD and related terms were identified and examined. Of the 57 publications identified, only 8.9% met the inclusion criteria and were reviewed. The five empirical articles included in this review were thematically analyzed, yielding four main themes in relation to spiritual or religious care: understanding of spiritual or religious concepts, support to participate in spiritual or religious activities, spiritual or religious practices in relation to self-identity, and barriers to spiritual or religious care provision. The authors conclude that more empirical and original research in relation to the spiritual care of people with IDD residing in IDD care services is needed.
    • Social prescribing in Bexley: pilot evaluation report

      Palmer, D.; Wheeler, J.; Hendrix, E.; Sango, Precious Nonye; Hatzidimitriadou, Eleni; Mind in Bexley; Canterbury Christ Church University (Mind in Bexley, 2017-01-27)
      Social prescribing is becoming recognised as an important means of harnessing the resources of the voluntary and community sector to improve the health and wellbeing of the public. It provides GPs with a non-medical referral option that can operate alongside existing treatments to improve health and well-being. While there is no widely agreed definition of social prescribing, or ‘community referrals’, reports on social prescribing include an extensive range of prescribed interventions and activities. The paper ‘A Call to Action’ by NHS England highlights social prescribing as a crucial means of empowering the public, enabling greater self-management of health and providing for people’s non-clinical needs in a timely way. The aim being to promote integrated health and social care, partnered with the voluntary and community sector. There is however little in the way of supporting evidence of effect to inform the commissioning of a social prescribing programme. Evidence on the cost effectiveness of social prescribing schemes is also lacking. The aim of this research was to evaluate the benefits and limitations of a social prescribing pilot which took place in the Clocktower locality (London Borough of Bexley) over a 24-month period and this work forms the main body of the study. The evaluation primarily covers individuals who accessed and fully engaged in the first eight months. The pilot which started in April 2015 was hosted by Mind in Bexley and focuses on nine GP practices covering a population of approximately 80,000. The evaluation was thorough and comprehensive incorporating both quantitative and qualitative analysis. Quantative data analysis and draft findings were undertaken by the School of Public Health, Midwifery and Social work at Christchurch University. The quantitative approach included an analysis of the Warwick and Edinburgh Mental Wellbeing Scale (WEMWBS) in addition to data on the number of primary care and secondary appointments including hospital admission data for those who participated in the scheme. The qualitative aspect of the evaluation involved in-depth interviews with participants. Although measuring the impact of the project on the wellbeing of participants is challenging the use of both qualitative and quantitative analysis was
    • Spiritual care for people with intellectual and developmental disability: an exploratory study

      Sango, Precious Nonye; Forrester-Jones, Rachel; Canterbury Christ Church University; University of Kent (Taylor & Francis, 2017-07-27)
      Background: A faith-based (pseudonym, Adam’s House – AH) and a non-faith-based care service (pseudonym, Greenleaves – GL) were explored to find out if and how spiritual support was provided for people with intellectual and developmental disabilities (IDDs). Method: Six months were spent volunteering within each service and a mixed-methods approach was utilised including applied and ethnographic methods to explore and describe if and how spirituality was embedded within the two services. Results: Themes found included community of value; homely functional care; and barriers to spiritual care. GL staff tended to provide what we termed “religious spiritual care” while AH staff administered both “religious” and “non-religious” spiritual-based support. This difference may be related to the type of training found only at AH which included spiritual dimensions. Conclusion: Services could benefit from acknowledging the importance and significance of spiritual care training and education for effective and varied spiritual care for people with IDD who desire such support.
    • Spirituality and social networks of people with intellectual and developmental disability

      Sango, Precious Nonye; Forrester-Jones, Rachel; Canterbury Christ Church University; University of Kent (Routledge, 2019-08-20)
      Background: Researchers contend that religious and spiritual communities may provide a conduit to friendship for people with IDD. This research explored the interface between social networks and spirituality for individuals with IDD living in either a faith or non-faith based service. Method: A mixed-methods approach was used including semi-structured interviews, the Social Network Guide and the Spiritual Belief Inventory-15R with individuals with IDD (or staff members who provided their opinions of what individuals who lacked capacity to consent would say if they had capacity). These findings were corroborated with extensive field notes generated from participant observation. Results: The faith-based group had a higher network size (m = 78) compared to the non-faith based group (m = 44). Those with larger social networks also reported higher SBI-15R scores. Conclusion: Findings highlight the possible role of social, religious and spiritual activities for expanding individuals’ social networks.
    • Spirituality and social networks of people with intellectual and developmental disability

      Sango, Precious Nonye; Forrester-Jones, Rachel; ; Canterbury Christ Church University; University of Kent (Taylor and Francis, 2017-05-24)
      Background: Researchers contend that religious and spiritual communities may provide a conduit to friendship for people with IDD. This research explored the interface between social networks and spirituality for individuals with IDD living in either a faith or non-faith based service. Method: A mixed-methods approach was used including semi-structured interviews, the Social Network Guide and the Spiritual Belief Inventory-15R with individuals with IDD (or staff members who provided their opinions of what individuals who lacked capacity to consent would say if they had capacity). These findings were corroborated with extensive field notes generated from participant observation. Results: The faith-based group had a higher network size (m = 78) compared to the non-faith based group (m = 44). Those with larger social networks also reported higher SBI-15R scores. Conclusion: Findings highlight the possible role of social, religious and spiritual activities for expanding individuals’ social networks.