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    Talking about end-of-life care: the perspectives of older South Asians living in East London

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    Authors
    Venkatasalu, Munikumar R.
    Arthur, Antony
    Seymour, Jane
    Affiliation
    Northumbria University
    University of East Anglia
    University of Nottingham
    Issue Date
    2013-07-02
    Subjects
    advance care planning
    minority ethnic
    end-of-life care
    communication
    South Asians
    death and dying
    
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    Abstract
    The National End-of-life Care Strategy for England identifies that a lack of open discussion about death and dying can be a barrier to achieving good quality end-of-life care. South Asians constitute the single largest ethnic minority group in the United Kingdom, yet little is known about their attitudes and expectations towards the discussion of death and dying. In this study, set in East London, five focus groups and 29 in-depth, semi-structured interviews were conducted with a total of 55 older adults aged between 52 and 78 years. Participants from six South Asian ethnic groups were recruited from 11 local community organisations. A constructivist grounded theory approach was used to analyse the data. Findings revealed two key themes which capture the perspectives of older South Asian study participants towards end-of-life care discussions. The theme ‘avoidance as a cultural norm’ relates to the relative absence of discussions around death and dying experienced by participants. Participants neither expected to have discussions about their own death and dying within their family, nor to assume any involvement in decision-making. The second theme ‘avoidance as protection’ relates to beliefs and experiences about the delegation of decision-making to family members. Future research should explore the perspectives of second-generation adult children towards end-of-life care discussions.
    Citation
    Venkatasalu, M.R., Arthur, A., Seymour, J. (2013) 'Talking about end-of-life care: the perspectives of older South Asians living in East London' Journal of Research in Nursing 18 (5):394
    Publisher
    SAGE
    Journal
    Journal of Research in Nursing
    URI
    http://hdl.handle.net/10547/593504
    DOI
    10.1177/1744987113490712
    Additional Links
    http://jrn.sagepub.com/cgi/doi/10.1177/1744987113490712
    Type
    Article
    Language
    en
    ISSN
    1744-9871
    1744-988X
    ae974a485f413a2113503eed53cd6c53
    10.1177/1744987113490712
    Scopus Count
    Collections
    IHR Institute for Health Research

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