A multi-centre qualitative study exploring the experiences of UK South Asian and White Diabetic Patients referred for renal care
Authors
Wilkinson, EmmaRandhawa, Gurch
Feehally, John
Farrington, Ken
Greenwood, Roger
Choi, Peter
Lightstone, Liz
Affiliation
University of BedfordshireIssue Date
2012Subjects
South Asianpatient experience
renal complications of diabetes
access
care pathway
renal disease
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Background An exploration of renal complications of diabetes from the patient perspective is important for developing quality care through the diabetic renal disease care pathway. Methods Newly referred South Asian and White diabetic renal patients over 16 years were recruited from nephrology outpatient clinics in three UK centres - Luton, West London and Leicester – and their experiences of the diabetes and renal care recorded. A semi-structured qualitative interview was conducted with 48 patients. Interview transcripts were analysed thematically and comparisons made between the White and South Asian groups. Results 23 South Asian patients and 25 White patients were interviewed. Patient experience of diabetes ranged from a few months to 35 years with a mean time since diagnosis of 12.1 years and 17.1 years for the South Asian and White patients respectively. Confusion emerged as a response to referral shared by both groups. This sense of confusion was associated with reported lack of information at the time of referral, but also before referral. Language barriers exacerbated confusion for South Asian patients. Conclusions The diabetic renal patients who have been referred for specialist renal care and found the referral process confusing have poor of awareness of kidney complications of diabetes. Healthcare providers should be more aware of the ongoing information needs of long term diabetics as well as the context of any information exchange including language barriers.Citation
Wilkinson, E., Randhawa, G., Feehally, K., Greenwood, R., Choi, P., Lightstone, L. (2012) 'A multi-centre qualitative study exploring the experiences of UK South Asian and White Diabetic Patients referred for renal care' BMC Nephrology 13:157Publisher
BioMed CentralPubMed Central ID
PMC3512518Type
ArticleLanguage
enISSN
0021-9193ae974a485f413a2113503eed53cd6c53
10.1186/1471-2369-13-157
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