Adding evidence to the ethics debate: investigating parents' experiences of their participation in research

2.50
Hdl Handle:
http://hdl.handle.net/10547/622005
Title:
Adding evidence to the ethics debate: investigating parents' experiences of their participation in research
Authors:
Westlake, David; Forrester, Donald
Abstract:
All research requires ethical scrutiny of the harm it may cause participants, yet we know relatively little about the actual experiences of service users who participate. This paper explores the views of parents and carers (n = 97) involved in an English study into outcomes for children known to Children's Services. Nearly all participants (96 per cent) who took part in two research interviews reported being glad they took part, and none expressed regret. Some participants (31 per cent) felt the interviews were difficult or upsetting to some degree, but most of these (90 per cent) also felt that talking to the researcher helped them with their problems. Indeed, parents who reported finding interviews upsetting were more likely to also find them helpful. We suggest that research needs to be considered as a form of intervention, rather than imagined as observing without influencing, and that as such it is necessary to balance both potential advantages and possible risks. Consequently, ethics committees need to focus on study design and the quality of interaction. This requires a focus on supporting researchers to not only ‘do no harm’, but to help people where possible. It also requires evaluation of the impact of research to be built into ethical study design.
Citation:
Westlake D., Forrester D. (2015) 'Adding evidence to the ethics debate: investigating parents' experiences of their participation in research', British Journal of Social Work, 46 (6), pp.1537-1552.
Publisher:
Oxford University Press
Journal:
British Journal of Social Work
Issue Date:
19-Nov-2015
URI:
http://hdl.handle.net/10547/622005
DOI:
10.1093/bjsw/bcv101
Additional Links:
https://academic.oup.com/bjsw/article-lookup/doi/10.1093/bjsw/bcv101
Type:
Article
Language:
en
ISSN:
0045-3102
Appears in Collections:
Applied social sciences

Full metadata record

DC FieldValue Language
dc.contributor.authorWestlake, Daviden
dc.contributor.authorForrester, Donalden
dc.date.accessioned2017-01-24T13:16:44Z-
dc.date.available2017-01-24T13:16:44Z-
dc.date.issued2015-11-19-
dc.identifier.citationWestlake D., Forrester D. (2015) 'Adding evidence to the ethics debate: investigating parents' experiences of their participation in research', British Journal of Social Work, 46 (6), pp.1537-1552.en
dc.identifier.issn0045-3102-
dc.identifier.doi10.1093/bjsw/bcv101-
dc.identifier.urihttp://hdl.handle.net/10547/622005-
dc.description.abstractAll research requires ethical scrutiny of the harm it may cause participants, yet we know relatively little about the actual experiences of service users who participate. This paper explores the views of parents and carers (n = 97) involved in an English study into outcomes for children known to Children's Services. Nearly all participants (96 per cent) who took part in two research interviews reported being glad they took part, and none expressed regret. Some participants (31 per cent) felt the interviews were difficult or upsetting to some degree, but most of these (90 per cent) also felt that talking to the researcher helped them with their problems. Indeed, parents who reported finding interviews upsetting were more likely to also find them helpful. We suggest that research needs to be considered as a form of intervention, rather than imagined as observing without influencing, and that as such it is necessary to balance both potential advantages and possible risks. Consequently, ethics committees need to focus on study design and the quality of interaction. This requires a focus on supporting researchers to not only ‘do no harm’, but to help people where possible. It also requires evaluation of the impact of research to be built into ethical study design.en
dc.language.isoenen
dc.publisherOxford University Pressen
dc.relation.urlhttps://academic.oup.com/bjsw/article-lookup/doi/10.1093/bjsw/bcv101en
dc.rightsGreen - can archive pre-print and post-print or publisher's version/PDF-
dc.subjectethicsen
dc.subjectresearch ethicsen
dc.subjectparentsen
dc.titleAdding evidence to the ethics debate: investigating parents' experiences of their participation in researchen
dc.typeArticleen
dc.identifier.journalBritish Journal of Social Worken
dc.date.updated2017-01-24T13:00:20Z-
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