A multi-centre qualitative study exploring the experiences of UK South Asian and White Diabetic Patients referred for renal care

2.50
Hdl Handle:
http://hdl.handle.net/10547/593389
Title:
A multi-centre qualitative study exploring the experiences of UK South Asian and White Diabetic Patients referred for renal care
Authors:
Wilkinson, Emma; Randhawa, Gurch ( 0000-0002-2289-5859 ) ; Feehally, John; Farrington, Ken; Greenwood, Roger; Choi, Peter; Lightstone, Liz
Abstract:
Background An exploration of renal complications of diabetes from the patient perspective is important for developing quality care through the diabetic renal disease care pathway. Methods Newly referred South Asian and White diabetic renal patients over 16 years were recruited from nephrology outpatient clinics in three UK centres - Luton, West London and Leicester – and their experiences of the diabetes and renal care recorded. A semi-structured qualitative interview was conducted with 48 patients. Interview transcripts were analysed thematically and comparisons made between the White and South Asian groups. Results 23 South Asian patients and 25 White patients were interviewed. Patient experience of diabetes ranged from a few months to 35 years with a mean time since diagnosis of 12.1 years and 17.1 years for the South Asian and White patients respectively. Confusion emerged as a response to referral shared by both groups. This sense of confusion was associated with reported lack of information at the time of referral, but also before referral. Language barriers exacerbated confusion for South Asian patients. Conclusions The diabetic renal patients who have been referred for specialist renal care and found the referral process confusing have poor of awareness of kidney complications of diabetes. Healthcare providers should be more aware of the ongoing information needs of long term diabetics as well as the context of any information exchange including language barriers.
Affiliation:
University of Bedfordshire
Citation:
Wilkinson, E., Randhawa, G., Feehally, K., Greenwood, R., Choi, P., Lightstone, L. (2012) 'A multi-centre qualitative study exploring the experiences of UK South Asian and White Diabetic Patients referred for renal care' BMC Nephrology 13:157
Publisher:
BioMed Central
Issue Date:
2012
URI:
http://hdl.handle.net/10547/593389
DOI:
10.1186/1471-2369-13-157
PubMed Central ID:
PMC3512518
Additional Links:
http://bmcnephrol.biomedcentral.com/articles/10.1186/1471-2369-13-157
Type:
Article
Language:
en
ISSN:
0021-9193
Appears in Collections:
IHR Institute for Health Research

Full metadata record

DC FieldValue Language
dc.contributor.authorWilkinson, Emmaen
dc.contributor.authorRandhawa, Gurchen
dc.contributor.authorFeehally, Johnen
dc.contributor.authorFarrington, Kenen
dc.contributor.authorGreenwood, Rogeren
dc.contributor.authorChoi, Peteren
dc.contributor.authorLightstone, Lizen
dc.date.accessioned2016-01-14T10:10:40Zen
dc.date.available2016-01-14T10:10:40Zen
dc.date.issued2012en
dc.identifier.citationWilkinson, E., Randhawa, G., Feehally, K., Greenwood, R., Choi, P., Lightstone, L. (2012) 'A multi-centre qualitative study exploring the experiences of UK South Asian and White Diabetic Patients referred for renal care' BMC Nephrology 13:157en
dc.identifier.issn0021-9193en
dc.identifier.doi10.1186/1471-2369-13-157en
dc.identifier.urihttp://hdl.handle.net/10547/593389en
dc.description.abstractBackground An exploration of renal complications of diabetes from the patient perspective is important for developing quality care through the diabetic renal disease care pathway. Methods Newly referred South Asian and White diabetic renal patients over 16 years were recruited from nephrology outpatient clinics in three UK centres - Luton, West London and Leicester – and their experiences of the diabetes and renal care recorded. A semi-structured qualitative interview was conducted with 48 patients. Interview transcripts were analysed thematically and comparisons made between the White and South Asian groups. Results 23 South Asian patients and 25 White patients were interviewed. Patient experience of diabetes ranged from a few months to 35 years with a mean time since diagnosis of 12.1 years and 17.1 years for the South Asian and White patients respectively. Confusion emerged as a response to referral shared by both groups. This sense of confusion was associated with reported lack of information at the time of referral, but also before referral. Language barriers exacerbated confusion for South Asian patients. Conclusions The diabetic renal patients who have been referred for specialist renal care and found the referral process confusing have poor of awareness of kidney complications of diabetes. Healthcare providers should be more aware of the ongoing information needs of long term diabetics as well as the context of any information exchange including language barriers.en
dc.language.isoenen
dc.publisherBioMed Centralen
dc.relation.urlhttp://bmcnephrol.biomedcentral.com/articles/10.1186/1471-2369-13-157en
dc.rightsArchived with thanks to Journal of bacteriologyen
dc.subjectSouth Asianen
dc.subjectpatient experienceen
dc.subjectrenal complications of diabetesen
dc.subjectaccessen
dc.subjectcare pathwayen
dc.subjectrenal diseaseen
dc.subject.meshBacillusen
dc.subject.meshCell Membraneen
dc.subject.meshCytoplasmen
dc.subject.meshEndopeptidasesen
dc.subject.meshEnzyme Precursorsen
dc.subject.meshEscherichia colien
dc.subject.meshKineticsen
dc.subject.meshLipoproteinsen
dc.subject.meshMembrane Proteinsen
dc.subject.meshMutationen
dc.subject.meshPenicillinaseen
dc.subject.meshProtein Processing, Post-Translationalen
dc.subject.meshSerine Endopeptidasesen
dc.titleA multi-centre qualitative study exploring the experiences of UK South Asian and White Diabetic Patients referred for renal careen
dc.typeArticleen
dc.contributor.departmentUniversity of Bedfordshireen
dc.identifier.pmcidPMC3512518en
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