Sickle cell, habitual dys-positions and fragile dispositions: young people with sickle cell at school

2.50
Hdl Handle:
http://hdl.handle.net/10547/250600
Title:
Sickle cell, habitual dys-positions and fragile dispositions: young people with sickle cell at school
Authors:
Dyson, Simon M.; Atkin, Karl; Culley, Lorraine A.; Dyson, Sue E.; Evans, Hala
Abstract:
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu’s notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual demands for active and passive pupil behaviour. The tactics or dispositions that young people living with sickle cell can then employ, during strategy and struggle at school, are therefore fragile: they work only contingently, transiently or have the unintended consequences of displacing other valued social relations. The dispositions of the young people with sickle cell are framed by other social struggles: innovations in school procedures merely address aspects of sickle cell in isolation and are not consolidated into comprehensive policies; mothers inform, liaise, negotiate and advocate in support of a child with sickle cell but with limited success. Reactions of teachers and peers to sickle cell have the enduring potential to drain the somatic, cultural and social capital of young people living with sickle cell
Citation:
Dyson, S., Atkin, K., Culley, L., Dyson, S. and Evans, H. (2011) 'Sickle cell, habitual dys-positions and fragile dispositions: young people with sickle cell at school', Sociology of Health & Illness, 33 (3), pp.465-483.
Publisher:
Blackwell Publishing
Journal:
Sociology of Health & Illness
Issue Date:
Mar-2011
URI:
http://hdl.handle.net/10547/250600
DOI:
10.1111/j.1467-9566.2010.01301.x
Additional Links:
http://doi.wiley.com/10.1111/j.1467-9566.2010.01301.x
Type:
Article
Language:
en
ISSN:
01419889
Appears in Collections:
IHR Institute for Health Research

Full metadata record

DC FieldValue Language
dc.contributor.authorDyson, Simon M.en_GB
dc.contributor.authorAtkin, Karlen_GB
dc.contributor.authorCulley, Lorraine A.en_GB
dc.contributor.authorDyson, Sue E.en_GB
dc.contributor.authorEvans, Halaen_GB
dc.date.accessioned2012-10-30T15:24:17Z-
dc.date.available2012-10-30T15:24:17Z-
dc.date.issued2011-03-
dc.identifier.citationDyson, S., Atkin, K., Culley, L., Dyson, S. and Evans, H. (2011) 'Sickle cell, habitual dys-positions and fragile dispositions: young people with sickle cell at school', Sociology of Health & Illness, 33 (3), pp.465-483.en_GB
dc.identifier.issn01419889-
dc.identifier.doi10.1111/j.1467-9566.2010.01301.x-
dc.identifier.urihttp://hdl.handle.net/10547/250600-
dc.description.abstractThe experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu’s notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual demands for active and passive pupil behaviour. The tactics or dispositions that young people living with sickle cell can then employ, during strategy and struggle at school, are therefore fragile: they work only contingently, transiently or have the unintended consequences of displacing other valued social relations. The dispositions of the young people with sickle cell are framed by other social struggles: innovations in school procedures merely address aspects of sickle cell in isolation and are not consolidated into comprehensive policies; mothers inform, liaise, negotiate and advocate in support of a child with sickle cell but with limited success. Reactions of teachers and peers to sickle cell have the enduring potential to drain the somatic, cultural and social capital of young people living with sickle cellen_GB
dc.language.isoenen
dc.publisherBlackwell Publishingen_GB
dc.relation.urlhttp://doi.wiley.com/10.1111/j.1467-9566.2010.01301.xen_GB
dc.rightsArchived with thanks to Sociology of Health & Illnessen_GB
dc.subjectsickle cell disorderen
dc.subjectsickle cellen
dc.subjectchronic illnessen
dc.titleSickle cell, habitual dys-positions and fragile dispositions: young people with sickle cell at schoolen
dc.typeArticleen
dc.identifier.journalSociology of Health & Illnessen_GB
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